GOLF CLASSIC 2024

3rd Annual Cure ARS Golf Classic
In honor of Daphne Magee

Daphne is 8yrs old and the granddaughter of Dr. Howard and Lisa Strauss. She was born with an ultra rare Mitochondrial Disease, Leukoencephalopathy with Thalamus and Brainstem involvement with High Lactate (LTBL). This condition is terminal and has no cure. This tournament is hosted by Daphne's mom, the Strauss' daughter, Desiree Magee who is the Co-Founder of CureARS.

EVENT DETAILs & registration

Date: October 5, 2024
Time: 8:00 AM EST Registration &
9:00 AM EST Shotgun Start

100% of proceeds will fund the CureARS Research Projects:

High Throughput Drug Screening Research at the Children's Hospital of Philadelphia. This research will help slow the progression of her disease so she can live the best life possible while waiting for a cure.
NORD IAMRARE Natural History/Patient Registry grant recipient at the Children's Hospital of Orange County with CHOC Research Institute and the University of California Irvine