We're Hiring!!!

Position: Operations Manager

CureARS and Channeling Hope Foundation will be sharing this resource 50% time allocated to each organization.

Overview of the Organizations:

Channeling Hope Foundation (50%): The Channeling Hope Foundation is a 501c3 non-profit organization that was founded by parents to build a global community of families and researchers to advance care and develop treatments for individuals affected by NALCN Channel-related disorders. NALCN Channel-related disorders are caused by mutations affecting the NALCN ion channel that result in severe neurodevelopmental diseases. The vision of Channeling Hope Foundation is a future free from NALCN Channel-related disorders. Key values include collaboration, ambition, transparency, and inclusion.

CureARS (50%): CureARS is a 501(c)(3) non-profit organization that was founded in 2021 by two moms with the goal of saving their kid's lives. Daphne Magee (EARS2 mutation) and Aubrie Rowland (AARS2 mutation) are both young girls affected by the ARS gene family. Mitochondrial (mt) Aminoacyl tRNA Synthetase (ARS) genes are essential for the cells in the body to make energy within the mitochondria. Inherited mutations in these genes cause ultra-rare types of Mitochondrial Disease (Mito). Mitochondria are essentially the "powerhouse" in our bodies or the "batteries" to sustain life. If the body does not receive the proper energy it needs for cellular function, cells begin to die, eventually leading to organ failure. High energy organs need more energy to function, and these organs may sustain more injury. Mitochondrial ARS genes all affect the brain, but can involve multiple organ systems in the body. Currently, there is no treatment and no cure for these conditions.

Purpose

Role Objectives

Duties & Responsibilities

Requirements & Qualifications

Compensation

How to Apply

We are seeking a dynamic and detail-oriented Operations Manager to oversee and optimize the internal operations and day-to-day functions of our organizations. This individual will play a pivotal role in ensuring the efficiency, effectiveness, and sustainability of our programs and initiatives, including research efforts. The Operations Manager will work closely with leadership, advisory teams, the disease community, and the scientific community to align operational processes with our mission and strategic goals. In doing so, the Operations Manager will have the opportunity to make a meaningful impact in the lives of individuals and families affected by these ultra rare diseases.

Maintain regular communication with organizational leaders, board members, and external stakeholders, including scientists, donors, grantmakers, conference vendors/planners, etc. to ensure efficient operations
Increase the efficiency of existing workflows and procedures to enhance the organization’s internal capacity
Ensure that operational activities remain on time and within budget

Key duties and responsibilities include:

Manage day to day administrative and operational needs of the organizations, including donor communications, bookkeeping, and limited grant reporting
Lead project implementation, which will include research and fundraising activities, among other focus areas
Provide logistical and operational support for research initiatives (with guidance from Chief Scientific Officers and Scientific Advisory Boards)
Develop and execute strategies and projects that increase programmatic efficiency
Assess and improve data collection and management of data systems
Stakeholder engagement, including fostering strong relationships with researchers, partners, donors, and patient/family communities.
Contribute to conference planning for the patient/scientific community
Represent organizations in meetings with grant officers and capacity building consultants/trainings and document takeaways to share with organizational leaders
Consider diversity, equity, and inclusion (DEI) in implementation of work assignments, including respect for persons with disabilities or complex medical needs

Other responsibilities, on occasion, will include:

Manage the onboarding process for new board members and new staff
Provide logistical and operational support for community-building events and activities
Work with the organizational leadership to conduct short- and long-term planning to create initiatives to further the organizations’ goals
Source and synthesize feedback and input from major programmatic constituents, including members, volunteers, partners, etc.

Bachelor's degree
Minimum of 2 years of experience in an operational or management role (experience working with medical, research, and/or non-profit organization preferred)
Experience with managing financial and accounting systems (Quickbooks preferred)
Demonstrated ability to handle multiple projects at a time, prioritize duties, and work independently while functioning as a member of a team
Proven ability to synthesize strategy into actionable tactics
Passion for advancing scientific research and addressing the needs of individuals affected by ultra-rare diseases
Experience and confidence in managing upwards and effectively coordinating project tasks with a wide range of stakeholders
Ability to effectively work independently, as well as part of a team, in a remote environment
Excellent interpersonal and communication skills, with the ability to engage diverse stakeholders
Sound judgment, integrity, and the ability to handle sensitive information with care and confidentiality
Excellent time-management and organizational skills
Strong presentation, listening and communication skills
Engaged, flexible, motivated and success-driven
Proficiency in Google Workspace, including skill using Google Sheets, Google Docs, and Google Forms
Proficiency in Zoom, including producing/facilitating meetings
Ability to travel is not required, but if interested, travel for this position could include attending conferences or organizational events

Hourly compensation ranges from $30 to $40, based on experience. The position allows for a maximum of 40 hours per week. Hours are flexible. Benefits include two weeks of paid time off (for sick leave or vacation) annually, with the option to take up to four additional weeks of unpaid time off. No health, dental or retirement benefits are included.

Interested candidates should submit a resume, cover letter, and three professional references to cure4ars@gmail.com by March 21, 2025.

These organizations are equal opportunity employers and encourage candidates of all backgrounds to apply. We are committed to fostering a diverse and inclusive workplace that reflects the communities we serve.